What happens to your data if 23andMe collapses? (news.harvard.edu)
from Tea@programming.dev to technology@lemmy.world on 24 Mar 18:15
https://programming.dev/post/27471441

#technology

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db2@lemmy.world on 24 Mar 18:19 next collapse

It isn’t yours, if you use them you signed it all over to them. They patented your DNA.

Flagstaff@programming.dev on 24 Mar 18:50 next collapse

The monsters.

Well, that originally autocorrected to “mobsters,” but I suppose that’d work in a certain context, too.

ShittyBeatlesFCPres@lemmy.world on 24 Mar 19:02 next collapse

I’m hoping in 500 years, my DNA sequence is found on a perfectly preserved micro SD card and my clone gets to meet President Camacho and take on Beef Supreme and the Dildozer on Monday Night Rehabilitation.

Alphane_Moon@lemmy.world on 24 Mar 19:35 collapse

That’s the optimistic timeline, we still have to actually get there first.

I am sure you can come with what a pessimistic timeline would look like.

felbane@lemmy.world on 24 Mar 22:27 collapse

I don’t have to, I watched Planet of the Apes

deranger@sh.itjust.works on 24 Mar 20:02 next collapse

That’s not true in the slightest. I agree with the fuck 23&me sentiment but you don’t have to make things up to criticize them.

db2@lemmy.world on 24 Mar 20:51 collapse

geneticspolicy.nccrcg.org/…/gene-patents/

tl;dr you’re mistaken

AmbiguousProps@lemmy.today on 24 Mar 22:37 next collapse

did you not read your link?

db2@lemmy.world on 25 Mar 04:46 collapse

Did you not?

deranger@sh.itjust.works on 25 Mar 01:13 collapse

the Supreme Court of the United States ruled in the Association for Molecular Pathology v. Myriad Genetics, Inc, that human genes cannot be patented because DNA is a “product of nature.” All gene patents were invalidated with this ruling.

db2@lemmy.world on 25 Mar 04:47 collapse

OK if nobody’s going to bother reading beyond that I give up. Be ignorant.

theherk@lemmy.world on 25 Mar 06:07 collapse

Maybe you can cite the exact statement we’re all missing. You can’t because the trouble you’re running into is that we did read it, and it seems perhaps you did not, but you can’t try. Summary: can’t patent unmanipulated genes. Can patent manipulated genes and sequencing processes.

sugar_in_your_tea@sh.itjust.works on 24 Mar 20:26 collapse

They patented your DNA.

You can’t patent DNA… They can sell it though, with a simple TOS update (if they even need to).

db2@lemmy.world on 24 Mar 20:52 collapse

geneticspolicy.nccrcg.org/…/gene-patents/

sugar_in_your_tea@sh.itjust.works on 24 Mar 20:57 next collapse

For those too lazy to click through:

However, on June 13, 2013, the Supreme Court of the United States ruled in the Association for Molecular Pathology v. Myriad Genetics, Inc, that human genes cannot be patented because DNA is a “product of nature.” All gene patents were invalidated with this ruling. However, the ruling did not prohibit the patenting of DNA that is manipulated (i.e., no longer a product of nature) or processes for identifying DNA sequences.

slickgoat@lemmy.world on 25 Mar 20:26 collapse

So if a lab rat adds, deletes or edits a person’s DNA it is no longer a ‘product of nature’?

sugar_in_your_tea@sh.itjust.works on 26 Mar 00:33 collapse

Apparently.

eager_eagle@lemmy.world on 24 Mar 21:52 collapse

[…] human genes cannot be patented because DNA is a “product of nature.” All gene patents were invalidated with this ruling.

did you paste the link to admit you were wrong?

db2@lemmy.world on 25 Mar 04:45 collapse

Did you stop reading before you should have?

homesweethomeMrL@lemmy.world on 24 Mar 18:38 next collapse

russian psyops gets quasi-dimensional

roofuskit@lemmy.world on 24 Mar 18:40 next collapse

This eventually.

youtu.be/NIIZ2P-fiyI

ininewcrow@lemmy.ca on 24 Mar 19:00 collapse

That is a great film that I should watch again … and so should everyone

sugar_in_your_tea@sh.itjust.works on 24 Mar 20:28 next collapse

Absolutely agree. This is one of my favorites.

roofuskit@lemmy.world on 24 Mar 20:45 collapse

One of my all time favorites.

sunzu2@thebrainbin.org on 24 Mar 18:57 next collapse

Many people got lured into this mistake without properly understanding the risk.

Now we know the risk.

Deny the parasite all data possible going forward.

RobotToaster@mander.xyz on 24 Mar 19:24 collapse

Yeah, I did mine like 15 years ago around when they first started accepting international orders (At the time they didn’t even have labs in the UK and they paid to TNT overnight ship my spit to America)

sunzu2@thebrainbin.org on 24 Mar 19:26 collapse

Yeah once I realize the mistake I told them to delete it. Not sure if they ever did.

oakey66@lemmy.world on 24 Mar 19:03 next collapse

After the Ashkenazi data leak, I deleted my data with them. Never sharing that again.

AlligatorBlizzard@sh.itjust.works on 25 Mar 01:43 collapse

My mom is Jewish and I’d been considering doing one of those DNA tests until that data leak happened, I was glad I hadn’t done it.

aleq@lemmy.world on 24 Mar 19:11 next collapse

There’s a non-zero % chance that a nazi with ties to the government and unlimited money might be interested in this data… 👀

nihilist_hippie@lemmy.ca on 24 Mar 19:34 next collapse

I never did a DNA test but both my parents did… How screwed am I?

Gregorech@lemmy.world on 24 Mar 20:11 next collapse

You should be fine, unless you’re planning on a life of crime.

sugar_in_your_tea@sh.itjust.works on 24 Mar 20:27 next collapse

Or if you’re a minority who could be framed for a crime.

midribbon_action@lemmy.blahaj.zone on 24 Mar 20:42 collapse

You should be fine to not have a phone PIN, unless you’re planning on a life of crime.

vk6flab@lemmy.radio on 24 Mar 20:14 collapse

If both your parents did a DNA test with the same company, and you are their child and not the result of a liaison with the milkman, you are 100% screwed.

If you are the product of a liaison with the milkman and the milkman didn’t do a DNA test with the same company, you’re 50% screwed.

If you were adopted, then there will be no impact from the DNA test, but if your parents didn’t tell you, they’re 100% screwed. (Assuming that your birth parents didn’t have a DNA test.)

In other words, there’s a non-zero chance that you’re screwed.

the_crotch@sh.itjust.works on 24 Mar 20:59 next collapse

Shit, they’re gonna want my DNA. I’m 1/8th Cherokee and I’m descended from Napoleon, Julius Caesar, Christopher Columbus, Abraham Lincoln, every signatory of the magna carta, Jesus, and the Mayflower. The actual ship. Don’t ask.

Thank you 23andme for telling me just how goddamn special I am simply for being born, now I’m not under any pressure to ever accomplish anything.

otacon239@lemmy.world on 25 Mar 05:20 collapse

I’m pretty sure you’re main character in an Assassin’s Creed game.

WuceBrillis@lemm.ee on 25 Mar 11:45 collapse

You can’t just go around accusing people of being mass murderers.

HK65@sopuli.xyz on 25 Mar 09:30 next collapse

You guys know that you share half your genome with your kids and parents, so it’s not even just the users’ data, but also people who might not even know about this.

biofaust@lemmy.world on 25 Mar 11:41 next collapse

I just passed by the settings page and requested all my data. When I receive it, I will delete the account which, according to their full privacy statement, requires them to discard my sample, delete my data AND opt me out of 23andMe Research.

GrumpyDuckling@sh.itjust.works on 25 Mar 11:48 next collapse

When the ACA gets repealed insurance comoanies can use it to preemptively deny you coverage. Then there’s the ethnic cleansing of course. There will be religious people who will use it for marriage licenses or breeding permits.

SplashJackson@lemmy.ca on 25 Mar 12:32 next collapse

I believe you and your genome become property of whomever buys the data and you’ll have to go over to their house and rake their leaves for them and stuff

howlingecko@sh.itjust.works on 25 Mar 16:35 next collapse

www.404media.co/dna-of-15-million-people-for-sale…

ipkpjersi@lemmy.ml on 25 Mar 19:19 next collapse

Same thing that happened with NCIX’s personal information data, it probably goes to the highest bidder.

AnUnusualRelic@lemmy.world on 25 Mar 19:33 collapse

Isn’t that what already happened to it before?

ipkpjersi@lemmy.ml on 25 Mar 21:03 collapse

Yes, correct, I made a typo. I fixed it now.

Horsey@lemmy.world on 25 Mar 19:27 next collapse

you should definitely request your data to be deleted before it’s too late

slickgoat@lemmy.world on 25 Mar 20:23 next collapse

I did this over a year ago, requesting that they delete my shit.

I got a nice email back saying that they would do so, but would retain necessary material to comply with local laws and law enforcement obligations.

So, my best bet is they didn’t delete anything. I only hope is that they don’t put it on the open market.

thisphuckinguy@lemmy.world on 26 Mar 00:08 collapse

Never did the stupid test.