I donated my DNA to a research project. I have Crohn’s disease and type 1 diabetes. I’m likely autoimmune prone.

I get updates about what it’s used for. Usually trying to identify causes for autoimmune diseases. It feels good to help out the people fighting disease.

Holy shit, GATTACA was supposed to be a cautionary tale, not an instruction manual!

how can we realistically protect something we broadcast.

With appropriate privacy laws and security measures. A smartphone is publicly broadcasting information, in that any other person could receive the radio transmissions emitted from them. But such eavesdropping would be illegal in most cases, and is mostly encrypted to hinder bad actors who don’t obey such laws.

It’s important we act now to ensure there are suitable privacy provisions in place now for all biometrics, before such things as mass DNA collection and sequencing are practical. Once such technology is available, perhaps we will also have to adapt our behaviour in public to prevent leakage of unprotected biometric assets.

Time to start advocating for biometric privacy, and investing in bodysuits and hair nets.

But what about the $0.20 or so that I'm owed for having my genes used for such a thing! No cancer cures until I get the pittance I deserve!

Here’s the difference, an artist can make more art. You cannot change your DNA. If someone steals some of your art it’s not the end of the world. You can make more. If someone has your DNA, you can’t change it. Once its out there that’s it. More over having someone’s DNA can give you significant insight into into just the person whose DNA you have but also their parents and their children.

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There’s a big difference between a person’s DNA and a person’s art. DNA is the principle part of someone’s biometric identity, which can be used to reveal an enormous amount of information about a person. Hence it is not unreasonable to expect that its usage will be handled in a careful and clearly defined manner. Most countries have very strict laws on biometric data for a reason.

The same can not be said for a piece of art. While an an artwork will often convey aspects of the artist’s personality, and can conform to an identifiable style, it would provide no where near the level of insight into a persons physical identity as a DNA sample.

It also seems a stretch to conflate sharing something privately and publishing something publicly. The former will have expectations of privacy and control, regardless of whatever is stated any legalese incomprehensible to the average person. The latter however assumes a loss of control, to share something publicly is in some ways to cede it to the public.

Oh sure, they’ll sell people’s DNA to insurance companies to help them discriminate against people, but it’s such a good cause.

Haha, decent show actually.

I hope you aren’t an Ashkenazi Jew.

They’ll never make a cure for cancer. Illness and death are far more profitable.

Here is an alternative Piped link(s):

https://www.piped.video/watch?v=U3EEmVfbKNs

Piped is a privacy-respecting open-source alternative frontend to YouTube.

I’m open-source; check me out at GitHub.

23 and me isn’t a healthcare provider and not a “covered entity” under HIPAA . So the protections that would apply if you got genetic testing through your doctor from an actual medical genetic testing company don’t actually apply to 23 and me. Though the company maintains it follows federal regulations voluntarily “as a courtesy.”

So don’t worry, your genetic data is protected by the good will of venture capital tech bros.

<img alt="" src="https://lemmy.world/pictrs/image/f190fa7d-4476-4fbf-8971-831a96dcf48f.png">

The fbi estimates they can use dna evidance to single dowm the possible people to 2 or 3 out of the entiriry of the us

i am not sure what you mean by this sentence, but you probably misunderstood something.

dna doesn’t single down anything, as in it would help you track something. it tells you if two genetic profiles are a match (that means they come from same person), or that they are genetically similar and how distant they are - that tells you that the profiles come from x times removed relatives. after that, it is down to normal police work.

here is veritasium video about how they used this technology to find and convict the infamous golden state killer - piped.video/watch?v=KT18KJouHWg

They do, there is a wide range of genetic tests done on newborns. Mostly looking for rare genetic diseases that need treatment from birth. www.genome.gov/…/Newborn-Genetic-Screening

originally it was sold as a way to quickly detect genetic diseases before they became a problem.

Too many people in the world crave an identity that is original enough to be interesting, but not so original that it can’t be quantified or defined by accepted or understood identity templates. They need to be able to put a name to their identity so they can talk about it.

Try developing a personality or interests.

says the guy criticizing strangers on the internet.

Seriously how dare people want to learn about their ancestors and where they came from? Obviously that means they have no personality!

I can’t unread this. Good job sir.

HATE

Put all the spit-focusd onlyfans out of buisness.

It’s commonly used by Adoptees to find their biological family. This can be important for a few reasons, including finally getting accurate family health history.

Why would you care who your great great great grandpa was?

I was able to find out that my great grandfather was adopted, and meet a whole new wing of my family. I didn’t even do the test, my aunt did.

About 10 years ago they provided medical data from the samples. I used 23 And Me too confirm that a health problem I’d recently been diagnosed with was hereditary. At the time I remember being asked if my sample could be used to aid the type of research the OP talks about and I agreed to it.

A couple of years ago, I think 23 And Me was bought out by Virgin Healthcare, at that point I asked them to destroy all my data was worried about it being used to increase the cost of or preclude health insurance.

Can you show us where?

Fuck yeah we did!

That’s probably the best case scenario honestly. They use our saliva and cure cancer. That’s a great thing for humanity.

The other applications range from questionable to dystopian… Making a database of everyone’s DNA for law enforcement, data leaks and dark-web selling your DNA sequences, insurance buying the data to limit coverage after a claim, forensic genealogy as a way to catch criminals, using forensic genealogy to predict future offenders, targeted bio weapons, future tech like making clones of people, manufacturing fake evidence to plant, using genetic info to target certain types of people (race, gender, what if sexuality is genetic)

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